Albinism Is Not A Race…

Albinism is NOT a Race

 By Joma K. Leonard

If you are a person with albinism, (PWA) you’ve heard the question before so many times. You know, the question that bothers some and others accept. The question (esp. blacks) throw around about as much as they throw around the N-word. The question that sparks debate among PWA regarding what’s right, and what’s wrong. “Are you albino?” Yeah, that question.

 

Now if you’re a PWA and you don’t mind being acknowledged as “albino” instead of “an albino”, more power to you. I refuse, and there are a few reasons why. I can’t tell you how many times I’ve heard acquaintances of mine describe me as “he’s albino” before “he’s cool, funny, etc.” The content of my character as an individual is totally overlooked by a mere label that barely defines me accurately. I’m well aware the people who ask this question mean no disrespect often times, however knowing there’s still a wide misconception on what albinism truly is makes me speak my mind.

 

Albinism is genetic as we all know within our own community. Many races and ethnic backgrounds have PWA among them. We exist in just about every corner of the world. Some of us are in the medical field, some are models, youtube sensations, professional tweeters, high school dropouts who turned into productive members of society, mothers, fathers, spouses, and many other things. We have our own sense of individuality; either we’ve adapted to society or we’ve been walking our own path. Albinism is more common in animals; most commonly the rat. Why would we even accept albino in a racial context knowing this?

 

Maybe because it’s been a part of what PWA deal with since childhood. A lot of us have been raised to say yes to the question, “are you albino?” Maybe some of us are so fed up with being bothered by people we just say whatever to get them to leave us alone. maybe because it’s always been this way. It doesn’t have to be. It isn’t for me. Sure, I’m a PWA but albinism is not my race; nor does it describe who I am. I have my own answer to that question. What’s yours?

Too White to be Black and too Black to be White: Living with Albinism

Quick Look

This book takes a close look at the life of a black male living with albinism. It gives the reader insight as to what life can be like for a black male or female with albinism growing up within the black community and the impact public humiliation, intimidation, and ridicule can have on an individual long-term. In addition this book can serve as a guide to both parents and young adults who may know someone or may themselves may be dealing with the hardship(s) of living with albinism. I not only discuss my own experiences but also those of others who have had a great influence in my life.

About the Author

Lee Edwards Book CoverLee G. Edwards was born December 27, 1961 in Tuskegee, Alabama. He is the son of Mr. Marvin A. Metcalf and Mrs. Margaret H. Metcalf. As one of five children which include three sisters and one brother he is the only one with albinism. Lee is a 1992 graduate of the University of Alabama at Birmingham with a Bachelor of Science degree in Human Resource Management. Mr. Edwards has been faced with the difficulty of living with albinism in the black community. In meeting the challenge he co-founded the Dayton Area Persons with Albinism in 1987. He also became a member of the National Organization for Albinism and Hypopigmentation (N.O.A. H) in 1987. Lee has had the opportunity to discuss the subject of albinism on radio talk shows in Ohio and Alabama. In June of 2000 Lee has founded the Atlanta Area Persons with Albinism with mid to long-term goal of hosting the N.O.A. H. conference. He has dedicated his life to making a positive difference in the lives of others who may be finding it difficult living with albinism.

Book Details

Too White to be Black and too Black to be White:
Living with Albinism
ISBN-13: 9781588200631
Publisher: AuthorHouse
Publication date: 5/28/2001
Pages: 132