Still Standing Strong IAAD 2019

Still Standing Strong: International Albinism Awareness Day 2019!

Celebrate the Beauty of Albinism by Sharing Your Experience!

We are The Albinism Alliance Group (TAAG)

IAAD 2019 StillStanding strong

It’s officially “International Albinism Awareness Day”, June 13, 2019 and many have been awaiting, yet another year to share the comradery that exists amongst us living with the condition of #albinism. The Albinism Alliance Group is excited to share in the festivities from Atlanta, Georgia. Although we are not hosting a major event this year it is our desire to host our first in 2020. 

This year we are taking advantage of technology and connecting with our brothers and sisters around the world and sharing what they are doing to commemorate this day of respect for the many challenges we may face, living with this condition. 

I (Ms.Rae Lowery) am a business owner in creative services and marketing design, who also works part time in retail sales support. www.cre8tivemedia.net Mrs. Dee Cuenca www.vare.net is the Author of the series My Life the Infamous Saga Buy “Intangible Love” Now! on Kindle from Amazon ” and coming soon to Amazon “Dilemma”. In addition she is the mother of 5 and happily married wife. With an exceptional family. 

A few moments with our family!

Still Standing Strong! IAAD June 13, 2019

In 2003 we set out to make a difference by joining efforts to create a comfortable way for persons with albinism to connect with each other in the metro Atlanta area. Initially our tone was focused on the betterment and representation of African Americans with albinism. As we matured we realized inclusion and being a part of mainstream culture was a more prevalent focus. To do this we simply decided to organize our ideas and present them with a unified message. 

Still Standing Strong IAAD 2019

Leadership Reflected in Our Choices

While we are 16 years into a journey that started when i was 25 years old, friends and family within the albinism community still work together to build a solid foundation for advocacy in the areas of low vision and personal and social adjustment. It is our desire to see not only that individuals in our area have a platform to use their voices collectively, but also that we are heard. Structuring delivery and investing in our presentation are a few of the ways we do things differently than the norm. Fostering moral through friendship and connecting one person at a time we have grown from three to a support network of 600+ individuals around the world. The world is a big place and we are glad we are able to make an impact in it.

Quite often it isn’t that opportunities to speak on albinism and surrounding issues are not available, but simply not accessible due to financial restrictions. Hosting events takes a great deal of planning and resources. Most often in my community, many of us are working hard to make ends meet and that about pushes us to our limits. Joining forces and sharing these costs can help level the playing field. The key has always been, to take control of the narrative and work as a team to create viable  solutions, for the things we need most. The next generation is venturing out independently, graduating from college and looking for work. Sharing our experiences can make this easier for someone else, in the most meaningful way. 

Grow with your cause and be intentional about progress.

Still STanding Strong IAAD 2019

My takeaway is, “use what you have… to do what you can.” Do not stress over comparing your efforts to those of someone else. You have what you need to create value for your work. No amount of education or special mention will grant you the “passion” to make a difference! It has to be a part of who you are as an individual. You communicate that by the choices you make and how you carry yourself. 

Listen to people in your community, learn what the issues are and work with others to build “real time” solutions that can be passed on to help others like yourselves. The conversation about human rights. relative to albinism is real, but its what we do after the conversation…  that makes a difference. 

Give yourself time to grow and invest wisely in your own mission. This builds credibility and demonstrates your strengths. Remember no one can take away your hard work and effort. Exhibiting gratitude for the ability to work toward something bigger than yourself is whats creates your legacy. Happy IAAD. Keep standing strong.  

International Albinism Awareness Day

Celebrate Yourself Everyday

The Albinism Alliance Group (TAAG) was formed out of a need for community in the Metropolitan Atlanta area, due to under representation by present organisations and leaders designated. We work together as a unit, using online communication, to keep one another encouraged and growing forward, by sharing experiences. We have been able to meet up and fellowship in informal settings and enjoy being ourselves without excluding ourselves from the masses or allowing ourselves to be exploited. The history of International Albinism Awareness Day, is important. We join with our brothers and sisters around the world to represent our community members, because each of us are someone to celebrate.

We are much more than the skin we are in

Human rights of persons with albinism is a real plight here in the US, but even more so in other countries. Discrimination for many basic resources is real and experienced often, no matter where we are. Self love, determination and the ability to preserver, can be key factors in learning how to make a mark in this world.  We are much more than the skin we are in, but In support of International Albinism Awareness Day, we have to join together to stop discrimination and promote the betterment of persons affected with albinism everywhere.

Human rights of persons with albinism is a real plight here in the US

We are talented and capable, due to low vision and the differences in appearance we are not often afforded the opportunity to show this in desired areas, this can reduce the quality of a persons life. Low vision plays a big role in this and persons non-affected by albinism may find it difficult to understand the impact of low vision depending on his or her own experience. There is something to be said about all who work toward some sort of normalcy in supporting themselves, getting around and accomplishing extraordinary things with the verbal and non verbal prejudice that exists. Your reward is earned and this day shows that with a measure passed in the UK, we now have June 13th, to officially celebrate “Albinism”. This was made effective as of June of 2015. See the link above for more details about the history of this measure. Hats off to us all! Stay connected to us via social media and join us as we continue celebrating the beauty of albinism, for years to come.