Awareness Through Action: Creating Productive Leaders in the Albinism Community
The conversation about human rights and albinism, is real. What happens after the conversation, can change the world. Many people start young on their journey to make a difference in the albinism Community, but it takes resources, planning and for a person to truly invest their own time and money in what they believe in.
Fundraising on a large or small scale, requires credibility. Investing your own funds ensures your project is not hijacked or controlled by those, seeking to exploit your cause. Give yourself a realistic amount of time to host events and network with potential sponsors. A digital press release with substance and that is well articulated, can create interest. However success with previous events help create credibility.
Everyone who dreams of changing the world, whether for the masses or a marginalized group, feel they are doing it differently. This is the main driving force within many of us. Simply believing that what they are doing or how they intend to do things… doesn’t exist anywhere. The truth is the best inventions are improvements, on things that already exist. I encourage you all to continue to follow your heart, but do your research. There is always someone who has come before us and someone who will come afterwards. However, if you do NOT document your own plan and organize your own thoughts.. you will NOT be able to articulate your Dream with value.
Most individuals want to build a team and seek the glory of being a leader in a monumental way, but you have to except the responsibility of the charge as well. There may be no fame that comes from your work. Also, no sponsors may help push you forward without a way for them to benefit from your work. When you take the time to organize your efforts and it truly means something to you… you will continue your work no matter the size of the audience.
True courage and confidence comes into play when we can see the big picture. There will be some backlash and a few obstacles, but a positive attitude, a well thought through plan and patience, will help you withstand the test of time.
Create your own outlets and platforms to build an audience on your own Merritt. Articulating what you do in existing groups is quick, but remember that is a platform for someone else. When we lead by example and exercise patience it demonstrates confidence and is beautiful within itself. Celebrate the Beauty of Albinism by sharing your experience.
The Albinism Alliance Group is a social advocacy network created of and for persons with albinism, our friends and supportive family. The “INCLUSION INITIATIVE “, one of our many projects that requires we as persons with albinism, stop limiting ourselves with labels, empty conversation and separating ourselves from the masses to create a “false confidence “ through speech ONLY. We do NOT have to own the stigma the world has and understanding that many of them stem from someone’s experience with a person with Albinism… is the first step.
Understanding that low-vision is the disability and albinism is the cause of lack of pigment and underdevelopment of the eye which contributes to the reduced visual acuities, is the second step. It’s how this effects the quality of our lives that poses a problem. Albinism may or may Not effect the color of skin, hair and or eyes. Sometimes it may effect only the eyes.
Stop focusing so much on the appearance of a person to distinguish the condition, but more so genetic testing can provide more precise information. What we look like doesn’t make us beautiful, but who we are can. It’s our hearts not our reflection that we should be celebrating. Awareness through action and joining forces, helps build momentum because you have several minds at work in multiple areas, simultaneously. Never stop being Afraid to create what doesn’t exist , but work smart to make an impact. Remember it takes time and you will do well. Thanks for reading.
Celebrate Yourself Everyday
The Albinism Alliance Group (TAAG) was formed out of a need for community in the Metropolitan Atlanta area, due to under representation by present organisations and leaders designated. We work together as a unit, using online communication, to keep one another encouraged and growing forward, by sharing experiences. We have been able to meet up and fellowship in informal settings and enjoy being ourselves without excluding ourselves from the masses or allowing ourselves to be exploited. The history of International Albinism Awareness Day, is important. We join with our brothers and sisters around the world to represent our community members, because each of us are someone to celebrate.
We are much more than the skin we are in
Human rights of persons with albinism is a real plight here in the US, but even more so in other countries. Discrimination for many basic resources is real and experienced often, no matter where we are. Self love, determination and the ability to preserver, can be key factors in learning how to make a mark in this world. We are much more than the skin we are in, but In support of International Albinism Awareness Day, we have to join together to stop discrimination and promote the betterment of persons affected with albinism everywhere.
Human rights of persons with albinism is a real plight here in the US
We are talented and capable, due to low vision and the differences in appearance we are not often afforded the opportunity to show this in desired areas, this can reduce the quality of a persons life. Low vision plays a big role in this and persons non-affected by albinism may find it difficult to understand the impact of low vision depending on his or her own experience. There is something to be said about all who work toward some sort of normalcy in supporting themselves, getting around and accomplishing extraordinary things with the verbal and non verbal prejudice that exists. Your reward is earned and this day shows that with a measure passed in the UK, we now have June 13th, to officially celebrate “Albinism”. This was made effective as of June of 2015. See the link above for more details about the history of this measure. Hats off to us all! Stay connected to us via social media and join us as we continue celebrating the beauty of albinism, for years to come.