Awareness Through Action: Creating Productive Leaders in the Albinism Community
The conversation about human rights and albinism, is real. What happens after the conversation, can change the world. Many people start young on their journey to make a difference in the albinism Community, but it takes resources, planning and for a person to truly invest their own time and money in what they believe in.
Fundraising on a large or small scale, requires credibility. Investing your own funds ensures your project is not hijacked or controlled by those, seeking to exploit your cause. Give yourself a realistic amount of time to host events and network with potential sponsors. A digital press release with substance and that is well articulated, can create interest. However success with previous events help create credibility.
Everyone who dreams of changing the world, whether for the masses or a marginalized group, feel they are doing it differently. This is the main driving force within many of us. Simply believing that what they are doing or how they intend to do things… doesn’t exist anywhere. The truth is the best inventions are improvements, on things that already exist. I encourage you all to continue to follow your heart, but do your research. There is always someone who has come before us and someone who will come afterwards. However, if you do NOT document your own plan and organize your own thoughts.. you will NOT be able to articulate your Dream with value.
Most individuals want to build a team and seek the glory of being a leader in a monumental way, but you have to except the responsibility of the charge as well. There may be no fame that comes from your work. Also, no sponsors may help push you forward without a way for them to benefit from your work. When you take the time to organize your efforts and it truly means something to you… you will continue your work no matter the size of the audience.
True courage and confidence comes into play when we can see the big picture. There will be some backlash and a few obstacles, but a positive attitude, a well thought through plan and patience, will help you withstand the test of time.
Create your own outlets and platforms to build an audience on your own Merritt. Articulating what you do in existing groups is quick, but remember that is a platform for someone else. When we lead by example and exercise patience it demonstrates confidence and is beautiful within itself. Celebrate the Beauty of Albinism by sharing your experience.
The Albinism Alliance Group is a social advocacy network created of and for persons with albinism, our friends and supportive family. The “INCLUSION INITIATIVE “, one of our many projects that requires we as persons with albinism, stop limiting ourselves with labels, empty conversation and separating ourselves from the masses to create a “false confidence “ through speech ONLY. We do NOT have to own the stigma the world has and understanding that many of them stem from someone’s experience with a person with Albinism… is the first step.
Understanding that low-vision is the disability and albinism is the cause of lack of pigment and underdevelopment of the eye which contributes to the reduced visual acuities, is the second step. It’s how this effects the quality of our lives that poses a problem. Albinism may or may Not effect the color of skin, hair and or eyes. Sometimes it may effect only the eyes.
Stop focusing so much on the appearance of a person to distinguish the condition, but more so genetic testing can provide more precise information. What we look like doesn’t make us beautiful, but who we are can. It’s our hearts not our reflection that we should be celebrating. Awareness through action and joining forces, helps build momentum because you have several minds at work in multiple areas, simultaneously. Never stop being Afraid to create what doesn’t exist , but work smart to make an impact. Remember it takes time and you will do well. Thanks for reading.
Celebrate Yourself Everyday
The Albinism Alliance Group (TAAG) was formed out of a need for community in the Metropolitan Atlanta area, due to under representation by present organisations and leaders designated. We work together as a unit, using online communication, to keep one another encouraged and growing forward, by sharing experiences. We have been able to meet up and fellowship in informal settings and enjoy being ourselves without excluding ourselves from the masses or allowing ourselves to be exploited. The history of International Albinism Awareness Day, is important. We join with our brothers and sisters around the world to represent our community members, because each of us are someone to celebrate.
We are much more than the skin we are in
Human rights of persons with albinism is a real plight here in the US, but even more so in other countries. Discrimination for many basic resources is real and experienced often, no matter where we are. Self love, determination and the ability to preserver, can be key factors in learning how to make a mark in this world. We are much more than the skin we are in, but In support of International Albinism Awareness Day, we have to join together to stop discrimination and promote the betterment of persons affected with albinism everywhere.
Human rights of persons with albinism is a real plight here in the US
We are talented and capable, due to low vision and the differences in appearance we are not often afforded the opportunity to show this in desired areas, this can reduce the quality of a persons life. Low vision plays a big role in this and persons non-affected by albinism may find it difficult to understand the impact of low vision depending on his or her own experience. There is something to be said about all who work toward some sort of normalcy in supporting themselves, getting around and accomplishing extraordinary things with the verbal and non verbal prejudice that exists. Your reward is earned and this day shows that with a measure passed in the UK, we now have June 13th, to officially celebrate “Albinism”. This was made effective as of June of 2015. See the link above for more details about the history of this measure. Hats off to us all! Stay connected to us via social media and join us as we continue celebrating the beauty of albinism, for years to come.
Sir Maejor decided to go into the acting and modeling arena because he wanted to take the world by storm. He is known for standing up for what is right, being different, setting tends and being original. Everyone want the money and the fame, but Sir Maejor wants to use his notoriety to create positive awareness for a topic that really doesn’t get discussed.
Suffering from Albinism is difficult, and many decide to suffer quietly, and to live quiet lives. As a child and young adult, Sir Maejor suffered from the same taunts and stereotypes that many albinos do growing up. He often got talked about, teased and taunted because he has albinism. Sometimes even the word albino offends him, depending on how people use it. Kids and adults can be cruel, he has been negatively called Michael Jackson, Ray Charles, Other, Powder, White Out, Casper, Yellowman, Lab Rat, Rat Boy, Shaun Ross, and Similac. Because those names were maliciously shouted to Sir Maejor, it really bothered him.
Sir Maejor says In terms of struggles and setbacks, being born with albinism has been one of the hardest things to deal with in his life. Many people born with albinism can’t see. They have poor vision which means in many cases they can never drive or get jobs that require 20/20 vision or better. He says he simply can’t see the things that you may be able to see.
Another struggle he endured was he had to realize that he was different. Sir Maejor had to adapt with what he was born with. He had to get use to this inferiority complex about himself. He wanted to be included and be in the popular crowd and feel accepted. But it was hard when he couldn’t do what everyone else could do. He couldn’t play basketball because I couldn’t see and in school, he couldn’t play out on the playground with the rest of the other student because the sun was out and I didn’t have sunscreen.
Goals and Aspirations
However, eventually Sir Maejor developed into the opposite of the common albino stereotype, an outgoing individual with dreams bigger than the skyscrapers on Atlanta’s skyline. Sir Maejor is here as an inspiration- and a reckoning- that what people identify as a disorder- can be a beautiful thing. Sir Maejor said he wants to create awareness about albinism, at the same time capitalize off his unique look, many may consider it to be a curse, but he considers albinism as a blessing.
Sir Maejor is different and won’t allow that or anyone’s personal negative opinions of him or what he look like affect his life. One thing Sir Maejor hopes to accomplish is to show that people with disabilities, birth defects or disorders of any kind, can do whatever they desire, if they put their minds to it, something that is easier said than done. Sir Maejor tells other aspiring models to strive to make their dreams a reality, much like he is.
Sir Maejor hopes to join the greats of (Zel) Denzel Washington, Will Smith, Dennis Haysbert and Kiefer Sutherland one day, and we can’t say we aren’t rooting for him. Sir Maejor wants to a iconic face in the business and responsible for taking your brand to new heights. Sir Maejor’s effervescent personality makes him hard to dislike; and his love of the spotlight will help him down the road in his career.
Sir Maejor was featured as reoccurring background actor in Season 3 of FX’s hit TV series “American Horror Story” where he plays a Sentinel. He also is featured in films such as “Cinema One”, “Let’s Be Cops”, and “Need for Speed” all which will be released in 2014. Sir Maejor proudly thanks Directors Alfonzo Gomez, Scott Waugh, Micheal Bay and casting directors Robin Batherson , Jamie of CL Casting, and Tammy Smith
**American Horror Story – Season 3
Let’s Be Cops
Need For Speed
http://www.SirMaejor.com (bio from website)
The AB Community has many heroes and because we practice inclusion not separation from the greats with our accomplishments, The Albinism Alliance Group salutes individuals making a difference by following their dreams. I ran across an extraordinary individual while surfing twitter through “Albinism News” and was proud to meet a doctor of medicine with her own practice in the state of Florida. With her expressed permission I am profiling Dr.Clarke of Clarke Chiropractic and Rehabilitation for The Albinism Alliance Group.
Dr. Shereffa Clarke was born in Montego Bay, Jamaica. She migrated to Broward County Florida with her family at the age of seven. At a very young age Dr. Clarke knew she wanted to serve her community through healthcare.
While attending Plantation High, Dr. Clarke was a part of Health Occupations Students of America (HOSA) an organization that fostered young people desires to enter into healthcare occupations. She was involved with numerous other activities while in high school, graduating in the top twenty-five percent of her high school graduating class. Dr. Clarke graduated from the University of South Florida with a Bachelors of Science in Biomedical Science, with the Honors College designation. Dr. Clarke graduated from Palmer College of Chiropractic Florida where she earned the Doctor of Chiropractic degree.
Along with serving her community through chiropractic, Dr. Clarke does community service in the form of road clean up, American Heart Walk, Relay for Life, Breast Cancer Walk and much more. She is a proud Member of The Faith Center Church in Sunrise, Florida. Dr. Clarke also serves her community through education; she is an adjunct professor at Broward College in the Biology department teaching Anatomy and Physiology.
In her free time Dr. Clarke likes to play musical instruments such as the clarinet and piano which she has played since elementary school and going to Karaoke. She enjoys spending time with her parents, siblings, and close friends. The following are credits to Dr.Clarke
Palmer Clinic Abroad – Bequia, Saint Vincent and the Grenadines
Awards and Recognitions
- Dean’s List Palmer College of Chiropractic Florida
- Phi Sigma Theta Honors Fraternity
- University of South Florida Honor College
- National Society of Collegiate Scholars
- Golden Key International Honor Society
- Who’s Who Among College Students
- American Black Chiropractic Association -Secretary
- Florida Chiropractic Association
- Eternal Legendary Queens Inc.
Building a Powerful Impact w/Grassroots Albinism Special Interest Groups!
The Albinism Alliance Group or TAAG is an advocacy network organized to “Celebrate the Beauty of Albinism!” To accomplish this we serve as an informational resource to the community. We’re creating a series of information pertinent to understanding living with albinism and related characteristics. TAAG envisions a larger mulch-cultural resource by joining forces with other special interest grassroots organizations.
The Albinism Alliance Group was formed in March of 2003. and created from merging “The Atlanta Area Support Group” and online social network “Blonde Black Cuties”. Since then, membership has grown tremendously and we currently have 397 members around the world.
We have furthered endeavors with social networking, online activities, and meet and greets. Additional activities and events have blossomed into meaningful memories by giving people from all walks of life, an opportunity to share experiences of living with albinism. An informal atmosphere and camaraderie has contributed to irreplaceable fellowship. Join us at the next event. See you there! Follow additional updates for The Albinism Alliance Group on Facebook Causes
1. Celebrating the Beauty of Albinism
2. Developing Strong Core to Keep and Bring Persons w/ Albinism Together
3. Empower the Next Generation w/Education and the Ability to Limit Low-Vision Disadvantages.
4. Create and Connect with Visual Stimulating Communication Channels which feature persons with Albinism
5. Delivering a Cause that supports inclusion for All persons with Albinism.