Celebrate the Beauty of Albinism by Sharing Your Experience!
We are The Albinism Alliance Group (TAAG)
It’s officially “International Albinism Awareness Day”, June 13, 2019 and many have been awaiting, yet another year to share the comradery that exists amongst us living with the condition of #albinism. The Albinism Alliance Group is excited to share in the festivities from Atlanta, Georgia. Although we are not hosting a major event this year it is our desire to host our first in 2020.
This year we are taking advantage of technology and connecting with our brothers and sisters around the world and sharing what they are doing to commemorate this day of respect for the many challenges we may face, living with this condition.
I (Ms.Rae Lowery) am a business owner in creative services and marketing design, who also works part time in retail sales support. www.cre8tivemedia.net Mrs. Dee Cuenca www.vare.net is the Author of the series My Life the Infamous Saga Buy “Intangible Love” Now! on Kindle from Amazon ” and coming soon to Amazon “Dilemma”. In addition she is the mother of 5 and happily married wife. With an exceptional family.
A few moments with our family!
Still Standing Strong! IAAD June 13, 2019
In 2003 we set out to make a difference by joining efforts to create a comfortable way for persons with albinism to connect with each other in the metro Atlanta area. Initially our tone was focused on the betterment and representation of African Americans with albinism. As we matured we realized inclusion and being a part of mainstream culture was a more prevalent focus. To do this we simply decided to organize our ideas and present them with a unified message.
Leadership Reflected in Our Choices
While we are 16 years into a journey that started when i was 25 years old, friends and family within the albinism community still work together to build a solid foundation for advocacy in the areas of low vision and personal and social adjustment. It is our desire to see not only that individuals in our area have a platform to use their voices collectively, but also that we are heard. Structuring delivery and investing in our presentation are a few of the ways we do things differently than the norm. Fostering moral through friendship and connecting one person at a time we have grown from three to a support network of 600+ individuals around the world. The world is a big place and we are glad we are able to make an impact in it.
Quite often it isn’t that opportunities to speak on albinism and surrounding issues are not available, but simply not accessible due to financial restrictions. Hosting events takes a great deal of planning and resources. Most often in my community, many of us are working hard to make ends meet and that about pushes us to our limits. Joining forces and sharing these costs can help level the playing field. The key has always been, to take control of the narrative and work as a team to create viable solutions, for the things we need most. The next generation is venturing out independently, graduating from college and looking for work. Sharing our experiences can make this easier for someone else, in the most meaningful way.
Grow with your cause and be intentional about progress.
My takeaway is, “use what you have… to do what you can.” Do not stress over comparing your efforts to those of someone else. You have what you need to create value for your work. No amount of education or special mention will grant you the “passion” to make a difference! It has to be a part of who you are as an individual. You communicate that by the choices you make and how you carry yourself.
Listen to people in your community, learn what the issues are and work with others to build “real time” solutions that can be passed on to help others like yourselves. The conversation about human rights. relative to albinism is real, but its what we do after the conversation… that makes a difference.
Give yourself time to grow and invest wisely in your own mission. This builds credibility and demonstrates your strengths. Remember no one can take away your hard work and effort. Exhibiting gratitude for the ability to work toward something bigger than yourself is whats creates your legacy. Happy IAAD. Keep standing strong.